The Make Your Dialogue Count questionnaire is designed to create a personalized, discussion guide to help you have better discussions with your doctor about living with advanced breast cancer.Take it Now
Some women with advanced breast cancer wish they had more time to talk to their doctors about their needs. In 2014, we commissioned the Make Your Dialogue Count survey to better understand how we can help you work with your healthcare team and loved ones to improve talks with your doctor.
Learn more about the Make Your Dialogue Count survey at AdvancedBreastCancerCommunity.org.
The focus of your doctor visits may change over time—from your diagnosis, to treatments switches or to managing treatment side effects. No matter what the focus, it is important to be honest and to speak up about your needs.
We used results from the 2014 Make Your Dialogue Count survey to create a personalized discussion guide to help you make the most of your time with your healthcare providers (e.g., physician, oncologist, nurse, psychologist).
To create your personal discussion guide:
This information can help you prepare for your doctor visits. We encourage you to come back and get a new discussion guide when you feel your emotions, concerns or priorities change.
This survey was conducted by Harris Poll on behalf of Novartis between June 19 and August 22, 2014. A total of 359 surveys were collected among women age 21+ diagnosed with advanced breast cancer (that is, breast cancer that has spread to distant parts of the body) in addition to 234 caregivers to women with advanced breast cancer and 252 licensed oncologists who treat at least five advanced breast cancer patients per month within the United States. Please note that some questions were only asked of patients who have received treatment for their advanced breast cancer (n=347). Similarly, for caregivers, some questions were only asked of caregivers whose loved has received advanced breast cancer treatment (n=230). Patient and caregiver interviews were collected via a variety of methods including online, phone, and paper methodologies. Patient and caregiver data were not weighted and therefore representative only of the individuals interviewed. All oncologist interviews were conducted online. Oncologist data were weighted by sex, years in practice and region where necessary to reflect the population of licensed oncologists practicing within the United States. No estimates of error can be computed.
Potential side effects of treatment vary for each therapy, and every person responds differently. Talk to your healthcare team about the potential side effects of treatment, including side effects like anxiety, depression or insomnia. If your healthcare team understands the side effects you are experiencing, they can better help you manage them.
Some of the women we surveyed said it was sometimes hard to take their cancer treatment as prescribed. It is okay to feel this way, but if you do, let your healthcare team know. Cancer treatment is complicated, so do not make changes before talking to your healthcare providers, even if you are experiencing side effects. The more information you communicate, the more they will be able to help you.